This post was about an incident that occurred Saturday, December 28, 2013.
As I have told many of you here, I have bowel problems. Well, I had an accident Saturday night while at the AT&T store. I was there for a couple of hours trying to fix an issue that should have taken only minutes to resolve. Anyway, there was a smell. I was embarrassed. It was not immensely strong, but it was noticable.
I skipped taking my tablets for a couple of days. I did not even think it would have that big of an impact. But now, I know.
I will have to take these tablets very regularly, not even missing one day. I cannot risk embarrassing myself and offending others.
Showing posts with label incontinence. Show all posts
Showing posts with label incontinence. Show all posts
Thursday, January 2, 2014
Friday, November 1, 2013
Reflections on a Past Experience
I will tell you a story that involved me sticking up for someone being
teased only about three years ago or so. I was at my friend's daughter's Head Start
facility, waiting for her to get out of her class. There was this little boy,
maybe about three years of age, who was still in diapers. I heard the teachers
talking out in the open about it. They said his mom sent him in diapers because
some medication he was on was giving him diarrhea. The little boy was crying
because he needed his diaper changed, and one of the teachers harshly said to
him in a loud voice, "You need to wait and be quiet. You should not even
be wearing diapers anyway. You're too old."
My heart ached for the boy because I
knew how he felt, and the poop was likely irritating his bottom, especially if
it was diarrhea. I had enough of this bullying and ignorant behavior, and I was
determined to show these moronic teachers that age does not determine when
someone does or does not wear diapers. I was unable to stand by any longer and
watch this go on and walk away and do nothing. I am not one who can stand by
and silently watch injustice. I have to get involved. The Bible says so,
anyway.
I jumped up from where I was
sitting, swung my diaper bag over my shoulder and opened it up. I pulled out
one of my diapers in full view, saying, "You know? I got an F in toilet
training! I am 26 and still have to wear diapers. I have a medical problem. I can't
control my bladder at all, and I sometimes poop myself. So, stop bullying that
little boy and change his diaper, so he can be comfortable. I know how it feels
to sit in diarrhea when I do it on myself and can't get to a place to change
fast enough. If I knew who his parents were, I’d tell them how you are treating
their child. You should be ashamed of yourself!" I said it loud enough so
all the parents, staff and anyone else could hear, and I swung my diaper around
in the air, so all could see it. Everyone was silent. I had the attention of
all in the waiting area.
Seconds after my outburst, the boy
was taken into the bathroom and changed. Other teachers and parents came up to
me and asked me about how incontinence impacted my life. I politely answered
their questions. I also got a number of comments from other parents and
teachers about how brave I was and how I’d be one who stands up and makes
changes for the better someday. I also got a few hugs from some.
I felt so proud of myself. Not only was it a teachable moment, it was a
moment when I could stand up for someone who was helpless and could not stand
up for himself. Children are the most helpless people of them all, and I cannot
stand by and watch one get mistreated without doing something.
An Update About My Week
This is a post that is an update for the last week of September.
Hello to all of my readers. I definitely did not forget about my blog. I
still love all of you guys and have a lot to tell you. I have just been too
sick and busy. The sick part is because I am on my treatment to get my Chronic
Candida under control, and the treatment makes me feel horrible. The good news
is that I am nearing the end of it, and I feel good. Hmmmmmmm, where to begin.
1. I had a crazy week with the bowels again. Yup, that sometimes happens. I
had diarrhea like every single day. I do not understand, my bowels pick the
time they want to act up, and they do it for no reason. I did try to eat
different foods and I tried taking different things out of my diet. Yeah, it
helps some, but not totally. I still have bowel issues, and when they want to
act crazy, they do. Just when I think I have this problem licked with some
special diet, I realize just how much I really don't.
2. The Diabetic-like urinating has gone away. While my bladder is still
very much overactive—that will never be cured unless some cure is ever found, I
have stopped urinating as much as I have been previously. My urine also does
not have the sweet smell anymore, probably because the yeast and harmful fungal
bacteria is dying off in my body. I am glad to not be filling up a diaper every
two hours. And yes, it is no exaggeration. I was really filling up good,
absorbent diapers every two hours, and that is not the norm at all.
3. I have been pondering what I am going to do with my Stigma Warriors
channel on YouTube. I established that channel to help shed light on diseases
and conditions that are highly stigmatized. I just have to plan out how I am
going to get things done. I need someone to help film for starters. I do know
what I am going to talk about, though, for my first few videos. And incontinence
will definitely be discussed, obviously.
That is all for this week.
A Detailed Update
Sorry it has been several weeks since I have updated this blog. I have had
a lot going on in my life. My grandfather had open heart surgery, and he was
doing badly for a little while. He had the surgery in the beginning of October.
Before that, I was feeling sick, so I just had enough strength to go to work,
come home and go to sleep. I had that chronic fatigue going on again. It never
fails.
Nothing really special has happened, though. I am still having serious
issues with my bowels. I had diarrhea most of the time, but I had some
constipation mixed in. I did not go to the bathroom for four days straight, and
it was painful. I thought I was going to have to go to the clinic if I could
not get myself to go. I took some meds, and I finally went.
So, I am going to add some posts that I have been meaning to post over the past
few weeks. I am going to share some experiences from my past and am going to
provide some useful tips. So, I hope you enjoy reading.
O, and I forgot to let all of you know that I do not have Diabetes. That is
some real good news! My problems are due to problems that my Chronic Systemic
Candida has caused. I did get some antifungal meds from the doctor and am
sticking to a strict diet. I am doing much better now with that.
Saturday, August 17, 2013
A Crazy Week with My Incontinence
This week was crazy with my incontinence issues. I do not even feel like crazy is the word to describe it. I am going to give a brief overview of what happened.
1. On one day, I had diarrhea six times. I had to change my diaper eight times during one workday because of it. I also got a terrible diaper rash as a result. Oh, it was terrible. It hurt so badly.
2. I have been urinating too much. I have been saturating my diapers a lot quicker than I normally do. I still am. I am not sure why.
3. I pooped myself one time while talking to a coworker. I was discussing business while it was happening. I felt real self-conscious about it but was glad nothing smelled. He did not even notice. If he did notice any change in my facial expressions, he never said anything. I hope I did not make facial expressions to give away that something was wrong. I also pooped my diaper while working on my government issued computer. Because I work with classified information, I can never leave that computer unattended. I was troubleshooting the computer and trying to shut it down. Because of all the encryption programs, it was taking some time. I really had to poop badly and was hoping I'd make it to the toilet. I squeezed my butt cheeks together and tried so hard not to lose control. It did not work at all. I messed myself. As soon as the computer was shut down, I locked it in my desk drawer. Then, I ran to the bathroom and changed my diaper.
What a pain. Seriously. What a week. I hope things calm down soon.
1. On one day, I had diarrhea six times. I had to change my diaper eight times during one workday because of it. I also got a terrible diaper rash as a result. Oh, it was terrible. It hurt so badly.
2. I have been urinating too much. I have been saturating my diapers a lot quicker than I normally do. I still am. I am not sure why.
3. I pooped myself one time while talking to a coworker. I was discussing business while it was happening. I felt real self-conscious about it but was glad nothing smelled. He did not even notice. If he did notice any change in my facial expressions, he never said anything. I hope I did not make facial expressions to give away that something was wrong. I also pooped my diaper while working on my government issued computer. Because I work with classified information, I can never leave that computer unattended. I was troubleshooting the computer and trying to shut it down. Because of all the encryption programs, it was taking some time. I really had to poop badly and was hoping I'd make it to the toilet. I squeezed my butt cheeks together and tried so hard not to lose control. It did not work at all. I messed myself. As soon as the computer was shut down, I locked it in my desk drawer. Then, I ran to the bathroom and changed my diaper.
What a pain. Seriously. What a week. I hope things calm down soon.
Saturday, July 13, 2013
Disappointments and Letdowns
Wow! I really have not posted to this blog in a long time. I thought I had updated about my meds failing. I guess that is what happens when you get so busy. Anyhow, here is my post ranting about the most recent failure.
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So, here it is. I am so disappointed. Success with Enablex was short lived, and I am back to the twenty-four/seven diaper wearing. I thought I was going to be able to tolerate it, but my body rejected once again. I kept getting severely constipated after a period of time on the meds, and the nausea was excruciating. The longest I lasted was approximately a month.
My doctor tried to prescribe me another med. It has no generic and costs over $200 a month, even with my insurance. That is a joke. I do not want to spend that kind of money just for another med to fail on me. After that, there is no hope for me and this overactive bladder of mine.
I am bummed. I feel let down. I thought for sure I was going to be liberated. What is it going to take for me to have a normal life? Is that too much to ask? Really? I have all of this underwear I cannot even wear. I might as well just donate it to the thrift store or some poor folks who are desperately in need. I did not wear it all that long. Or, should I hold onto it for the next time there may be some fake-me-out success? I am so tired of being a part of this vicious cycle of success and fail, success and fail. I am tired of riding this roller coaster. I want to get off, for goodness sakes!
Some people tell me to just accept it. They try and tell me it can't be that bad and that there are worse things that can happen, like cancer and having a terminal illness. I suppose that is true, but it does not change the fact I have to live with this freaking yoke that smothers me. Granted that diapers allow me to lead a productive life, socializing with friends, working, being active outside the house and traveling. But, diapers are also a form of bondage to me. Diapers cause hassles that people who are without incontinence never have to face, such as diaper rash and yeast infections that occur often. If you have sensitive skin like I do, then it can be a whole barrel of fun. I also find diapers inconvenient sometimes because the rest rooms are not really set up to allow discrete disposal of them, so others cannot see, and the stalls are so small. Not to mention, you have to find a place to change when you are out. And things are going to be real interesting when I fly to Florida this summer. I wonder if I am going to have to strip because I am wearing one. That will be humiliating, as if incontinence is not already humiliating enough.
As far as accepting my condition is concerned, I have. What some fail to realize is that there is a difference between accepting and liking. One can accept having AIDS, but it does not mean they love having it. It does not mean that they won't have bad days and feel down on themselves. Healthy people are so clueless! They understand nothing of having a chronic problem. So, it is so easy for them to spout out of their mouths what we need to be doing. I have a feeling it if were them, they'd be crying about it like we do. They'd have good and bad days like we do. They'd be singing a much different tune. Then where will their praises about just accepting it, chilling out and getting over it be found then? Well, they won't.
I have accepted my condition enough to the point that I am very open about it. That is obvious, since I post my feelings, my triumphs and my failures with incontinence on this public blog and share the posts on Facebook. I am comfortable talking about it. I am not ashamed of it. However, that does not mean I love urinating on myself or love having to wear diapers. I have my good and my bad days. I sometimes cry and complain, and by golly, I am more than entitled to do that.
I also want to help others who have this condition get to a place in their lives where they can feel confident about themselves and have the courage to lead normal lives. Incontinence causes many to become reclusive because they are too embarrassed to leave their homes. There is so much shame and stigma surrounding this condition, and it all starts with the things that children are told during potty training, like underwear equals big boy or girl and diapers equal baby, potty equals good and accident equals bad. Being the spokes person for my condition and working hard to educate the public and break down the walls of stigma and shame is the way that I cope with having this condition. It gives me purpose and allows me to forget my feelings for a bit, provides a release for me and enables me to feel good by helping others.
I do want to end my post by saying that I am thankful for a supportive family. My family never judges my condition, and they never ridicule me. I am truly blessed because many with incontinence are not so fortunate. Some have been brutally embarrassed by parents and relatives because their families feel like they can help it and are doing this stuff on purpose and for attention. I cannot tell you how many horror stories I have heard during my time as an advocate and educator. Some are so heartbreaking and even disgusting. This is what keeps me doing what I do. and while I have been ridiculed and persecuted for talking about my condition so openly, it just demonstrates to me all the more that there is a need for people who have courage to stand up, go against the grain and show the world that incontinence is a health problem like anything else, and it should not be so stigmatized.
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So, here it is. I am so disappointed. Success with Enablex was short lived, and I am back to the twenty-four/seven diaper wearing. I thought I was going to be able to tolerate it, but my body rejected once again. I kept getting severely constipated after a period of time on the meds, and the nausea was excruciating. The longest I lasted was approximately a month.
My doctor tried to prescribe me another med. It has no generic and costs over $200 a month, even with my insurance. That is a joke. I do not want to spend that kind of money just for another med to fail on me. After that, there is no hope for me and this overactive bladder of mine.
I am bummed. I feel let down. I thought for sure I was going to be liberated. What is it going to take for me to have a normal life? Is that too much to ask? Really? I have all of this underwear I cannot even wear. I might as well just donate it to the thrift store or some poor folks who are desperately in need. I did not wear it all that long. Or, should I hold onto it for the next time there may be some fake-me-out success? I am so tired of being a part of this vicious cycle of success and fail, success and fail. I am tired of riding this roller coaster. I want to get off, for goodness sakes!
Some people tell me to just accept it. They try and tell me it can't be that bad and that there are worse things that can happen, like cancer and having a terminal illness. I suppose that is true, but it does not change the fact I have to live with this freaking yoke that smothers me. Granted that diapers allow me to lead a productive life, socializing with friends, working, being active outside the house and traveling. But, diapers are also a form of bondage to me. Diapers cause hassles that people who are without incontinence never have to face, such as diaper rash and yeast infections that occur often. If you have sensitive skin like I do, then it can be a whole barrel of fun. I also find diapers inconvenient sometimes because the rest rooms are not really set up to allow discrete disposal of them, so others cannot see, and the stalls are so small. Not to mention, you have to find a place to change when you are out. And things are going to be real interesting when I fly to Florida this summer. I wonder if I am going to have to strip because I am wearing one. That will be humiliating, as if incontinence is not already humiliating enough.
As far as accepting my condition is concerned, I have. What some fail to realize is that there is a difference between accepting and liking. One can accept having AIDS, but it does not mean they love having it. It does not mean that they won't have bad days and feel down on themselves. Healthy people are so clueless! They understand nothing of having a chronic problem. So, it is so easy for them to spout out of their mouths what we need to be doing. I have a feeling it if were them, they'd be crying about it like we do. They'd have good and bad days like we do. They'd be singing a much different tune. Then where will their praises about just accepting it, chilling out and getting over it be found then? Well, they won't.
I have accepted my condition enough to the point that I am very open about it. That is obvious, since I post my feelings, my triumphs and my failures with incontinence on this public blog and share the posts on Facebook. I am comfortable talking about it. I am not ashamed of it. However, that does not mean I love urinating on myself or love having to wear diapers. I have my good and my bad days. I sometimes cry and complain, and by golly, I am more than entitled to do that.
I also want to help others who have this condition get to a place in their lives where they can feel confident about themselves and have the courage to lead normal lives. Incontinence causes many to become reclusive because they are too embarrassed to leave their homes. There is so much shame and stigma surrounding this condition, and it all starts with the things that children are told during potty training, like underwear equals big boy or girl and diapers equal baby, potty equals good and accident equals bad. Being the spokes person for my condition and working hard to educate the public and break down the walls of stigma and shame is the way that I cope with having this condition. It gives me purpose and allows me to forget my feelings for a bit, provides a release for me and enables me to feel good by helping others.
I do want to end my post by saying that I am thankful for a supportive family. My family never judges my condition, and they never ridicule me. I am truly blessed because many with incontinence are not so fortunate. Some have been brutally embarrassed by parents and relatives because their families feel like they can help it and are doing this stuff on purpose and for attention. I cannot tell you how many horror stories I have heard during my time as an advocate and educator. Some are so heartbreaking and even disgusting. This is what keeps me doing what I do. and while I have been ridiculed and persecuted for talking about my condition so openly, it just demonstrates to me all the more that there is a need for people who have courage to stand up, go against the grain and show the world that incontinence is a health problem like anything else, and it should not be so stigmatized.
My Work Situation is So Ideal
This post was supposed to be posted on the 29th of May; however, that was not possible. I have been immensely busy, so I am posting all of these posts now to catch up on my blogging.
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I started my first day of work. Let me tell you that I absolutely love my job and the people there. I mean, I cannot ask for anything better. There is nothing like loving what you do and being able to get along with everyone there.
What is also nice is there are facilities for me to use to properly dispose of my diapers. There are nice sanitary bins in the stalls for women to use to throw away their napkins and tampons, and my diapers fit nicely in there. I was prepared to take along brown paper lunch bags and dispose of them in the communal trash can that is near the paper towels; however, I am glad to know I will not need to do that.
While I do not mind who knows about my incontinence problem, it is nice to be able to throw away my diapers discretely, so I will not have to engage in dialogue when I am in a hurry. I have no problem stopping to talk to people about my problem. After all, education is the key to reducing the stigma. But when time is a commodity, I cannot always do that.
I cannot ask for a more ideal work situation. Life is awesome! And Jehovah God is so good!
Wednesday, March 28, 2012
My Mission As Incontinence Advocate Makes a Difference
Two things happened in the last few weeks that reminded me of the purpose of my incontinence advocacy work. It is these two things that have definitely reaffirmed what I am doing is an awesome thing and that I need to keep on with it, despite any persecution I may receive as a result.
The first thing that happened was that a student from UNCC Carolina studying urology contacted me. He found my blog and was interested in interviewing me because he wanted a personal perspective. He conducted his interview through email. He asked me what a day was like living with incontinence and using adult diapers to manage Overactive Bladder. I told him what he wanted to know. I not only explained what a typical day with incontinence was like, I also told him what it was like to take vacations and how using adult diapers impacted those occasions.
I also talked about what life was like when using incontinence medications. I told him about my past experiences, as well as my current one.
He will more than likely be contacting me in the future, as he told me he would throughout his studies. I totally do not mind because I love educating people about this condition, especially if I can provide a new kind of insight.
The second thing that happened to me was that a woman in my incontinence support group that I run contacted me by phone and told me that the courage that I have taken to so openly discuss my condition and my willingness to help educate society and help others suffering from incontinence has helped to liberate her. She told me that rather than live in shame and lying to people about what her problems were, she was ready to stand up and face the facts. She told me that she felt she no longer had to allow Overactive Bladder to rule her life. Rather, she was going to rule it. She told me she was going to take the bull by the horns and face things head on.
I felt so touched by this woman that I almost cried when listening to her talk. I know that people before have told me countless times that they appreciated my work and what I do, but it was something about this woman that really touched me. I could tell she was so pained. I mean, she was so ashamed that she got rid of her boyfriend because she feared having accidents during intimacy, and she said it would be the death of her if her boyfriend found out. She told me her incontinence made her feel dirty. She told me that she went through several pairs of underwear a day and that she did not want to see the doctor because she was too embarrassed. She said that she was considering wearing diapers and just being done with it. I told her she really should get the courage to see the doctor, and I also told her what to say if her doctor ended up being the judgmental type, as some are when it comes to incontinence. I do not know, but I think some of these doctors get their degrees on their backs because the way they treat patients, when they know that incontinence effects people of all ages and has many causes, is absolutely crazy. I told her to ask about Enablex, the medication I take and see what the doctor said. I told her the meds were working for me and that if they worked for her, she could be free of the prospect of wearing diapers, at least until there was no way the meds would help anymore. I wished her well, and we will definitely be talking regularly, since she is also a part of the blind community. She really is one awesome lady.
Do you see, people, why it is so important that the view of society towards the condition of incontinence is changed? People fear being judged so bad that this condition actually imprisons them, forces them to isolate and give up doing the things they loved. It should not have to be this way. That is why I do what I do. It is my hope that through sharing my experiences, supporting those with incontinence, and doing my best to educate as many as I can that the walls of stigma are eventually torn down and that all people with incontinence can be liberated and freed from their prison of shame. I will not stop doing what I do until I either die or the stigma is gone, as God is my witness.
Sunday, February 26, 2012
One Last Try At Being Normal: Taking a Trip to the Urologist to See About My Overactive Bladder
This week, I am going to attempt to go back to the urologist to do something about my overactive bladder. As many of you who read my blog know, I have been completely urinary incontinent for seven years now. I have depended on diapers to manage my incontinence. The last few doctors I've seen, one included a urologist, told me that there was nothing I could do for my condition, thus I would have to wear diapers for the rest of my life. I previously accepted that. Last year, though, things changed.
I got tired of just accepting that nothing could be done for my overactive bladder, so I talked the matter over with my primary care doctor. He told me that he could try me on Ditropan to see how it would work. Now, I took Ditropan when I was eleven years old for a brief period, but I had some negative effects from the medication. I started sleep walking, had hallucinations, and had terrible nightmares. I was taken off of it after a week of being on it. I told my primary care doctor about this, and he told me that I had nothing to worry about because it had been so long since I took the medication, and things would be different, since I was an adult. He also told me that these reactions were common in children. I agreed to try the medication again.
Ditropan did seem to work somewhat. I noticed that the amount of times I had to urinate were less frequent. I even found it possible to make it to the bathroom somewhat, but I still had a lot of accidents. I also found that accidents would happen when I was focused on things, like my work. Perhaps, this happened because I was so used to going in the diaper, and I had not used the toilet for so long. I was also wetting the bed every single night still.
I took the meds for a couple of months. During this time, I set a timer to remind me to take frequent bathroom breaks, and I had to stop work frequently to avoid getting so focused that I'd wet on myself. I wanted so bad to retrain my muscles to use the toilet. Because the meds lessened my urges, I was able to have slight progress. It was not good enough, though. I still had to depend very heavily on the diapers.
Though I was not nearly where I wanted to be, there were some things happening that gave me some hope. I was on the lowest dose of medication during that time. I wonder if things will work to the point of me being able to get out of diapers and wear underwear if I am given some sort of therapy to help me build my bladder muscles back up (I am sure they have somewhat atrophied because I completely relied on diapers for seven years now.) and the dosage of the medication is increased. That is why I am going to see a urologist.
I am really nervous about this. I am also scared of being let down. I know that taking the medication is only a temporary fix and that I will eventually end up where I am right now, back in diapers and very disappointed, but I just want to enjoy underwear and being normal for a little while. It has been so long since I wore underwear that I forgot what it feels like. I also somewhat forgot what it is like to use the bathroom on a regular basis, so I will have to relearn. It is going to be like I am potty training again. I have to get used to using the toilet instead of using the diaper. It is going to be very difficult at first because I am going to have to take scheduled bathroom breaks to work on daytime toilet training. When that is mastered, I can then work on nighttime toileting, if it can be achieved. Like a toddler, I am going to have to get out of diapers slowly, but I will not get rid of the ones I have left. I am going to keep them for when the meds stop working down the line. Diapers are expensive, so I will not trash them. I do hope, however, that I will not need them for several years.
There are surgeries that can temporarily correct overactive bladder. I say temporarily because they often have to be repeated, especially in the case of the Sacral nerve Stimulator. Or, the surgeries fail after a period of time, like in the case of the surgery that is used to increase bladder capacity. Also, the side effects of these surgeries are extremely serious, and from what I had read, the risks outweigh the benefits. Not to mention, special maintenance is required lifelong. There is a bladder removal surgery, but I am so not willing to have my bladder taken out and replaced by a bag that is similar to a colostomy. Forget that! I do not want to get out of diapers that bad that I severely change my life for the worst. I love to swim. I love making love, and I love so much else that will be ruined, if I were to consent to bladder removal. So, no way!
I thank God that my husband is very supportive and understanding of me during all of this. It really helps because this is a very difficult thing to live with, especially because society makes it so taboo. He lovingly takes time to listen to my concerns, and that really means a lot to me. His love and support makes coping a lot easier. God has blessed me with a fabulous mate who understands me and loves me for who I am. He is encouraging me to get help and do all that I can, and he told me that if things did not work out, he would not be upset. I am glad of that. My husband told me that so long as I tried my best that was what mattered. I will certainly try my best.
He has always been supportive and understanding, even before we were married. My husband and I have been best friends going on ten years. He has never judged me or thought negatively of me because of my incontinence. When we first became friends, I tried to keep it a secret from him. I never intended for him to find out, but he did on accident. When he did find out, he handled it quite well. He was so noble and kind about it. Sometime in the future, I will share the story about how he found out about my problem.
I will keep all of you updated about what happens at the urologist, as well as let you know about my progress.
I got tired of just accepting that nothing could be done for my overactive bladder, so I talked the matter over with my primary care doctor. He told me that he could try me on Ditropan to see how it would work. Now, I took Ditropan when I was eleven years old for a brief period, but I had some negative effects from the medication. I started sleep walking, had hallucinations, and had terrible nightmares. I was taken off of it after a week of being on it. I told my primary care doctor about this, and he told me that I had nothing to worry about because it had been so long since I took the medication, and things would be different, since I was an adult. He also told me that these reactions were common in children. I agreed to try the medication again.
Ditropan did seem to work somewhat. I noticed that the amount of times I had to urinate were less frequent. I even found it possible to make it to the bathroom somewhat, but I still had a lot of accidents. I also found that accidents would happen when I was focused on things, like my work. Perhaps, this happened because I was so used to going in the diaper, and I had not used the toilet for so long. I was also wetting the bed every single night still.
I took the meds for a couple of months. During this time, I set a timer to remind me to take frequent bathroom breaks, and I had to stop work frequently to avoid getting so focused that I'd wet on myself. I wanted so bad to retrain my muscles to use the toilet. Because the meds lessened my urges, I was able to have slight progress. It was not good enough, though. I still had to depend very heavily on the diapers.
Though I was not nearly where I wanted to be, there were some things happening that gave me some hope. I was on the lowest dose of medication during that time. I wonder if things will work to the point of me being able to get out of diapers and wear underwear if I am given some sort of therapy to help me build my bladder muscles back up (I am sure they have somewhat atrophied because I completely relied on diapers for seven years now.) and the dosage of the medication is increased. That is why I am going to see a urologist.
I am really nervous about this. I am also scared of being let down. I know that taking the medication is only a temporary fix and that I will eventually end up where I am right now, back in diapers and very disappointed, but I just want to enjoy underwear and being normal for a little while. It has been so long since I wore underwear that I forgot what it feels like. I also somewhat forgot what it is like to use the bathroom on a regular basis, so I will have to relearn. It is going to be like I am potty training again. I have to get used to using the toilet instead of using the diaper. It is going to be very difficult at first because I am going to have to take scheduled bathroom breaks to work on daytime toilet training. When that is mastered, I can then work on nighttime toileting, if it can be achieved. Like a toddler, I am going to have to get out of diapers slowly, but I will not get rid of the ones I have left. I am going to keep them for when the meds stop working down the line. Diapers are expensive, so I will not trash them. I do hope, however, that I will not need them for several years.
There are surgeries that can temporarily correct overactive bladder. I say temporarily because they often have to be repeated, especially in the case of the Sacral nerve Stimulator. Or, the surgeries fail after a period of time, like in the case of the surgery that is used to increase bladder capacity. Also, the side effects of these surgeries are extremely serious, and from what I had read, the risks outweigh the benefits. Not to mention, special maintenance is required lifelong. There is a bladder removal surgery, but I am so not willing to have my bladder taken out and replaced by a bag that is similar to a colostomy. Forget that! I do not want to get out of diapers that bad that I severely change my life for the worst. I love to swim. I love making love, and I love so much else that will be ruined, if I were to consent to bladder removal. So, no way!
I thank God that my husband is very supportive and understanding of me during all of this. It really helps because this is a very difficult thing to live with, especially because society makes it so taboo. He lovingly takes time to listen to my concerns, and that really means a lot to me. His love and support makes coping a lot easier. God has blessed me with a fabulous mate who understands me and loves me for who I am. He is encouraging me to get help and do all that I can, and he told me that if things did not work out, he would not be upset. I am glad of that. My husband told me that so long as I tried my best that was what mattered. I will certainly try my best.
He has always been supportive and understanding, even before we were married. My husband and I have been best friends going on ten years. He has never judged me or thought negatively of me because of my incontinence. When we first became friends, I tried to keep it a secret from him. I never intended for him to find out, but he did on accident. When he did find out, he handled it quite well. He was so noble and kind about it. Sometime in the future, I will share the story about how he found out about my problem.
I will keep all of you updated about what happens at the urologist, as well as let you know about my progress.
Common Potty Training Statements Offend (A True Story)
"You are going to be such a big girl when you finally learn to use the potty," said my friend as she was bringing her three year old daughter to the pot to sit on it. I was standing over at the fridge to get out a TV dinner that I would be eating for lunch. It was meatloaf, mashed potatoes, and corm. It has always been a favorite of mine. I stopped preparing the dinner and just stood there with it in my hands. I was taken aback by this statement she made to her daughter.
"Wait a minute. Why did you just say that?" I asked kind of hurt.
"I am just trying to encourage her to use the potty," said my friend.
"By lying to her?" I asked.
"I am not lying to her!" she shot back.
"Yes you are because diapers are not just for babies and being able to use the potty does not make you all grown up. I wear diapers, and I am an adult who is a professional business owner and powerful blindness advocate. And there are stupid immature adults who can use the potty who act like children and do nothing with their lives but sit on their butts and collect off other people's tax dollars. At least I am industrious and give a darn about earning my own and doing my part to contribute to society. Some baby, huh? I really am a stupid baby because I have to wear diapers? I hate the way society programs kids to think. Nobody is all grown up just because they can take a piss and a crap on the pot. Wow! Some qualifications to making one an adult! I am afraid it takes much more than that."
I did not give her a chance to answer. I dropped my TV dinner on the counter, not caring about eating anything at that point. I put on my slippers, and I stormed from the hotel room. I ran as fast as I could with tears streaming down my face. I was forgetting everything that I was taught about crying in public. I grew up knowing it was a very shameful thing to do and that one should keep the emotions in check in front of others. But this hurt too much. Fortunately, nobody was in the hall, except my friend who was completely blind (I honestly did not know she was there, until she called out to me. That was a real surprise.). She would not have known I was crying because I made no sound. The tears were the only indication of my crying.
"What's wrong," my friend asked. She was standing over at the elevators. "I know it is you, Reina, because I can hear your footsteps. Why are you running? Who or what are you running from?"
I got my voice in check and then said, "I am hurt right now. I hate the way people lie to their children to get them to use the potty. I hate it! I hate it! Saying statements, like "Diapers are for babies and using the potty is for big boys and girls." is so freaking stupid! It is stupid I tell you! It should be just as bad to say these statements, as it is to say racist comments. That crap should be considered hate speech." I was rambling on, but I just did not care. I was glad she was blind because she could not see the tears coming down my face, so I technically would not have violated what I had been taught. I did good to disguise my voice, so it would come out in an angry tone and not give any indication that I was crying. I am good to putting up that kind of front, you know?
"Do you want to talk?" she asked.
"Yes," I said, and my voice was barely audible.
We went down to her room. She was another floor below mine.
"So, what happened?" my friend asked. "Why are you all upset?"
I relayed the entire experience to her. She sat and patiently listened to me. She was a really good sport.
"I can understand how that will upset you."
"You do?" I asked.
"Absolutely," she said. "I understand that it made you feel inferior because you have a medical problem that requires you to wear diapers, and you are far from a baby. I can see how those types of statements about diapers being for babies and the potty being for big people would offend you."
Whew, I was so glad she understood. I was glad she did not judge me or write me off, thinking I was crazy because those things upset me.
"Do you want to go to the bar to eat and have a few drinks?"
"Yeah," I said. "But, I have to go back to my room to get my wallet and things. And boy, is my friend going to be happy to see me."
"I'll go with you."
"That may be a good idea," I said. "I do owe her an apology. I really did freak out on her. It was not her fault. She was only doing what society does to teach and motivate children to use the potty. She did not know any better, and she especially did not know it would offend me. Oh, I feel so bad."
We walked down the hall together to the elevators, and then we went to my room. I put the key in the door, and we both went into the room.
"Vonnie," I called to my friend. "I owe you an apology. I am so sorry I freaked out on you about the potty training thing earlier."
"Don't worry about it," she said.
"Are you sure?" I asked. "I really blew up at you. I mean, you did not know it would hurt me. After all, you were only doing what society programs parents to do to help children learn to use the potty and feel motivated about doing it. You were only following the propaganda."
"Yes, after I thought about it, I understood why you felt so bad. You know what you should do?"
"What?" I asked.
"You should go online to that support group you go on, and you should talk to them about how to deal with things like that. I think it would help you to talk to others who have to deal with the same thing and see how they handled it."
"I like that idea," I said. "Thank you so much."
"No problem. I am trying to help."
"Thanks, Vonnie," I said.
I went over to the desk where my computer sat, picked up my wallet and my bag, and I walked to the door.
"Vonnie," I said. "I am just letting you know I am going down to the bar to get some drinks. After that, I am going to hang out with some friends, eat some food, and probably go out shopping or something. If you need anything at all, call me."
"Okay."
We left the room. Boy was I so relieved that my friend understood. It was not like I was trying to be mean or anything. I understood she was only trying to help her daughter and was doing what she knew, but those statements send up rage inside of me. I wish they could never be used again. I find them to be dishonest and hurtful. The only way that such statements can stop being used is by not only educating the public about the condition of incontinence and how such statements make us feel, but we can also give people alternatives that will help encourage the children all the same that will not be so offensive.
Alternative Praises for Children Learning to Use the Potty
Wow! You did it! I am so proud of you!
Way to go! You are doing great! Keep up the good work!
Wow! You used the potty! Good work!
that is how you use the potty! See how good you've done! Awesome job! Let's see you keep on doing it.
If you keep using the potty and can stay dry, we will go and pick out your favorite underwear. You can pick out your favorite cartoon character or favorite color.
Do you know what all five of these alternative praises have in common? The phrases, "You will be a big boy or big girl." "Diapers are for babies and underwear is for grownups." or "You will soon be all grown up." are omitted. These alternative praises allow the child to feel encouraged and good about what he or she is doing, and it is all being done honestly without using phrases that continue to nurture the stigma of incontinence.
"Wait a minute. Why did you just say that?" I asked kind of hurt.
"I am just trying to encourage her to use the potty," said my friend.
"By lying to her?" I asked.
"I am not lying to her!" she shot back.
"Yes you are because diapers are not just for babies and being able to use the potty does not make you all grown up. I wear diapers, and I am an adult who is a professional business owner and powerful blindness advocate. And there are stupid immature adults who can use the potty who act like children and do nothing with their lives but sit on their butts and collect off other people's tax dollars. At least I am industrious and give a darn about earning my own and doing my part to contribute to society. Some baby, huh? I really am a stupid baby because I have to wear diapers? I hate the way society programs kids to think. Nobody is all grown up just because they can take a piss and a crap on the pot. Wow! Some qualifications to making one an adult! I am afraid it takes much more than that."
I did not give her a chance to answer. I dropped my TV dinner on the counter, not caring about eating anything at that point. I put on my slippers, and I stormed from the hotel room. I ran as fast as I could with tears streaming down my face. I was forgetting everything that I was taught about crying in public. I grew up knowing it was a very shameful thing to do and that one should keep the emotions in check in front of others. But this hurt too much. Fortunately, nobody was in the hall, except my friend who was completely blind (I honestly did not know she was there, until she called out to me. That was a real surprise.). She would not have known I was crying because I made no sound. The tears were the only indication of my crying.
"What's wrong," my friend asked. She was standing over at the elevators. "I know it is you, Reina, because I can hear your footsteps. Why are you running? Who or what are you running from?"
I got my voice in check and then said, "I am hurt right now. I hate the way people lie to their children to get them to use the potty. I hate it! I hate it! Saying statements, like "Diapers are for babies and using the potty is for big boys and girls." is so freaking stupid! It is stupid I tell you! It should be just as bad to say these statements, as it is to say racist comments. That crap should be considered hate speech." I was rambling on, but I just did not care. I was glad she was blind because she could not see the tears coming down my face, so I technically would not have violated what I had been taught. I did good to disguise my voice, so it would come out in an angry tone and not give any indication that I was crying. I am good to putting up that kind of front, you know?
"Do you want to talk?" she asked.
"Yes," I said, and my voice was barely audible.
We went down to her room. She was another floor below mine.
"So, what happened?" my friend asked. "Why are you all upset?"
I relayed the entire experience to her. She sat and patiently listened to me. She was a really good sport.
"I can understand how that will upset you."
"You do?" I asked.
"Absolutely," she said. "I understand that it made you feel inferior because you have a medical problem that requires you to wear diapers, and you are far from a baby. I can see how those types of statements about diapers being for babies and the potty being for big people would offend you."
Whew, I was so glad she understood. I was glad she did not judge me or write me off, thinking I was crazy because those things upset me.
"Do you want to go to the bar to eat and have a few drinks?"
"Yeah," I said. "But, I have to go back to my room to get my wallet and things. And boy, is my friend going to be happy to see me."
"I'll go with you."
"That may be a good idea," I said. "I do owe her an apology. I really did freak out on her. It was not her fault. She was only doing what society does to teach and motivate children to use the potty. She did not know any better, and she especially did not know it would offend me. Oh, I feel so bad."
We walked down the hall together to the elevators, and then we went to my room. I put the key in the door, and we both went into the room.
"Vonnie," I called to my friend. "I owe you an apology. I am so sorry I freaked out on you about the potty training thing earlier."
"Don't worry about it," she said.
"Are you sure?" I asked. "I really blew up at you. I mean, you did not know it would hurt me. After all, you were only doing what society programs parents to do to help children learn to use the potty and feel motivated about doing it. You were only following the propaganda."
"Yes, after I thought about it, I understood why you felt so bad. You know what you should do?"
"What?" I asked.
"You should go online to that support group you go on, and you should talk to them about how to deal with things like that. I think it would help you to talk to others who have to deal with the same thing and see how they handled it."
"I like that idea," I said. "Thank you so much."
"No problem. I am trying to help."
"Thanks, Vonnie," I said.
I went over to the desk where my computer sat, picked up my wallet and my bag, and I walked to the door.
"Vonnie," I said. "I am just letting you know I am going down to the bar to get some drinks. After that, I am going to hang out with some friends, eat some food, and probably go out shopping or something. If you need anything at all, call me."
"Okay."
We left the room. Boy was I so relieved that my friend understood. It was not like I was trying to be mean or anything. I understood she was only trying to help her daughter and was doing what she knew, but those statements send up rage inside of me. I wish they could never be used again. I find them to be dishonest and hurtful. The only way that such statements can stop being used is by not only educating the public about the condition of incontinence and how such statements make us feel, but we can also give people alternatives that will help encourage the children all the same that will not be so offensive.
Alternative Praises for Children Learning to Use the Potty
Wow! You did it! I am so proud of you!
Way to go! You are doing great! Keep up the good work!
Wow! You used the potty! Good work!
that is how you use the potty! See how good you've done! Awesome job! Let's see you keep on doing it.
If you keep using the potty and can stay dry, we will go and pick out your favorite underwear. You can pick out your favorite cartoon character or favorite color.
Do you know what all five of these alternative praises have in common? The phrases, "You will be a big boy or big girl." "Diapers are for babies and underwear is for grownups." or "You will soon be all grown up." are omitted. These alternative praises allow the child to feel encouraged and good about what he or she is doing, and it is all being done honestly without using phrases that continue to nurture the stigma of incontinence.
Sunday, August 7, 2011
Potty Training Children without Using Comments That Are Offensive to Incontinent People
Nothing makes me madder than for people to say that children are now big boys or big girls for using the potty. Why does it make me so mad? Well, because it is so far from the truth.
I find such comments to be offensive. I can understand that parents need to encourage their children during potty training; however, I feel that potty training encouragement can be provided without having to lie to the kids. Yes, telling kids that they are now grown because they are using the potty is a lie. Sure, it is what most normal adults do. But what is not being considered is that there are many intelligent adults who are far from being babies that need to wear diapers to manage a medical condition.
I've potty trained a number of children, and not once did I have to resort to telling them that they are wearing big boy or big girl underwear or stupid stuff like that they are all grown up for using the potty. I've used other motivators. What I've done is as follows:
*Made potty time special by providing toys and books that can only be played with while on the potty.
*Used a whole lot of praise.
*Used potty treats and potty prizes.
*Played potty games to help pass the time and make things a lot of fun.
*Made the bathroom a comfortable place, such as by providing soft andfluffy rugs to keep the kids from having to walk on the cold floor, using a soft toilet seat, and making sure the temperature in the bathroom is tolerable.
I am pleased to say that all the children I've worked with have responded well. I plan to use these methods on my own children also. Never do I want my children to be fed the trash that diapers are for babies only. I want my children to be tolerant of people with all sorts of medical conditions. What's more, I want them to know the truth. I want to be one who contributes to making a stigma free generation. A stigma free generation will make life easier for individuals with incontinence.
I find such comments to be offensive. I can understand that parents need to encourage their children during potty training; however, I feel that potty training encouragement can be provided without having to lie to the kids. Yes, telling kids that they are now grown because they are using the potty is a lie. Sure, it is what most normal adults do. But what is not being considered is that there are many intelligent adults who are far from being babies that need to wear diapers to manage a medical condition.
I've potty trained a number of children, and not once did I have to resort to telling them that they are wearing big boy or big girl underwear or stupid stuff like that they are all grown up for using the potty. I've used other motivators. What I've done is as follows:
*Made potty time special by providing toys and books that can only be played with while on the potty.
*Used a whole lot of praise.
*Used potty treats and potty prizes.
*Played potty games to help pass the time and make things a lot of fun.
*Made the bathroom a comfortable place, such as by providing soft andfluffy rugs to keep the kids from having to walk on the cold floor, using a soft toilet seat, and making sure the temperature in the bathroom is tolerable.
I am pleased to say that all the children I've worked with have responded well. I plan to use these methods on my own children also. Never do I want my children to be fed the trash that diapers are for babies only. I want my children to be tolerant of people with all sorts of medical conditions. What's more, I want them to know the truth. I want to be one who contributes to making a stigma free generation. A stigma free generation will make life easier for individuals with incontinence.
Tuesday, July 19, 2011
I'm Back for Good and Catching Up
Hey guys:
I know that it has been awhile since I have written to this blog, and that is a horrible thing. My life got kind of hectic, and sadly, the blog took a backseat. But, I am back, and it is for a number of reasons.
1. Sharing my life with incontinence encourages numerous people around the globe. I know because people have emailed me and told me so.
2. I've received correspondences with people asking me about my blog and when I would pick it up again.
3. People need information, such as what I am providing on my blog, because it is rare that such things will be found anywhere else on the web.
With all of that said I'm back and continuing my blog. I will never let this blog take a backseat again; being that I absolutely and positively know that it has an impact on so many people. I owe it to all of my readers to continue to provide fresh content. I will provide fresh content on a weekly basis, if not more often.
Now, I have some catching up to do here. Hmmmm, where to begin?
For starters, I'll start out by updating you on what happened after I switched to my new supplier. I know it was so long ago, but since I said I'd tell you what happened, I'm going to keep my promise.
Things did not go as well as I thought that they would. Kendall diapers are completely out for me. Even the Kendall diapers by that new supplier, Neighbor Care, did not fit me. As a matter of fact, the Kendall diapers were just as bad as the ones I tried before. I do not know who these diapers are designed for, but they are certainly not designed for me. They do not fit my body shape. I do not know whose body shape they are designed to fit because they look so weird and are designed so weird. I mean, most other diapers are not designed in such a crazy way. The only other diaper that I know that is designed so weird is the Wings Choice. I'll never use them again, either. The way the Wings Choice diapers look like they are designed is for those who have a large upper body and a skinny lower body. Wings Choice diapers will not work for people with pear shaped figures or hour glass figures. With all of that said about the Kendall diapers, I switch to a medical supplier who has slightly better choices, but not too much better, and I am now using Tranquility diapers.
I absolutely love to use Tranquility diapers. They are absorbent, fit very well, and they are durable and have the plastic backing that I like. I do not have too much of a problem with the diapers that have the cloth outer cover; however, they have to be made well. I have been badly disappointed by some of the diapers once they have switch to the cloth outer cover because it seemed that once that happened, the quality of these diapers have diminished. But I will say, though, that there are diapers that have not diminished in quality as a result of having the cloth outer cover, and those I will use.
On that note, I look forward to providing you guys, my readership, with fresh content that will encourage and supply necessary information. And as always, feel free to give me your feedback. It is more than welcome.
I know that it has been awhile since I have written to this blog, and that is a horrible thing. My life got kind of hectic, and sadly, the blog took a backseat. But, I am back, and it is for a number of reasons.
1. Sharing my life with incontinence encourages numerous people around the globe. I know because people have emailed me and told me so.
2. I've received correspondences with people asking me about my blog and when I would pick it up again.
3. People need information, such as what I am providing on my blog, because it is rare that such things will be found anywhere else on the web.
With all of that said I'm back and continuing my blog. I will never let this blog take a backseat again; being that I absolutely and positively know that it has an impact on so many people. I owe it to all of my readers to continue to provide fresh content. I will provide fresh content on a weekly basis, if not more often.
Now, I have some catching up to do here. Hmmmm, where to begin?
For starters, I'll start out by updating you on what happened after I switched to my new supplier. I know it was so long ago, but since I said I'd tell you what happened, I'm going to keep my promise.
Things did not go as well as I thought that they would. Kendall diapers are completely out for me. Even the Kendall diapers by that new supplier, Neighbor Care, did not fit me. As a matter of fact, the Kendall diapers were just as bad as the ones I tried before. I do not know who these diapers are designed for, but they are certainly not designed for me. They do not fit my body shape. I do not know whose body shape they are designed to fit because they look so weird and are designed so weird. I mean, most other diapers are not designed in such a crazy way. The only other diaper that I know that is designed so weird is the Wings Choice. I'll never use them again, either. The way the Wings Choice diapers look like they are designed is for those who have a large upper body and a skinny lower body. Wings Choice diapers will not work for people with pear shaped figures or hour glass figures. With all of that said about the Kendall diapers, I switch to a medical supplier who has slightly better choices, but not too much better, and I am now using Tranquility diapers.
I absolutely love to use Tranquility diapers. They are absorbent, fit very well, and they are durable and have the plastic backing that I like. I do not have too much of a problem with the diapers that have the cloth outer cover; however, they have to be made well. I have been badly disappointed by some of the diapers once they have switch to the cloth outer cover because it seemed that once that happened, the quality of these diapers have diminished. But I will say, though, that there are diapers that have not diminished in quality as a result of having the cloth outer cover, and those I will use.
On that note, I look forward to providing you guys, my readership, with fresh content that will encourage and supply necessary information. And as always, feel free to give me your feedback. It is more than welcome.
Wednesday, July 29, 2009
I Need to Complain and I'm Entitled!
Hi people,
It has been a long time since I’ve contributed anything worthwhile to this blog. No worries I’ve not forgotten you people. I’ve just been busy, been under the weather, and all that good stuff. I have a whole lot to tell you guys about these past few weeks; however, I will do it gradually in different posts. But for now, I feel like complaining. Everyone is entitled, right? Well, here is my long, drawn out rant. Brace yourself because it will be a long one.
I hate wearing diapers! If I could get rid of them and be cured, I would! No wonder babies cry! No wonder they freak out. To parents who do not understand, and most do not as they are not wearing diapers themselves and do not know how it feels, change your baby as soon as they wet. Please, I beg you please, do not let them sit in it and get to it when it is convenient for you. I know how horrible it feels, and unlike a baby, I can actually communicate this to you. Diapers are the pits. They are the worse. The only thing I’m grateful about them is that they allow me to lead a normal social life. Other than that, I’d love to be rid of them. I’d love to just wave my finger one time and be rid of this stupid incontinence.
When I have children, I’m going to do elimination communication, which means I’m potty training them from birth. I will never, ever subject my baby to the evils of diaper wearing if it is not necessary. If there is no medical problem present, anybody, even a baby, has any business wearing a diaper, since babies are born fully continent. It is our society that trains them to go in a diaper just to retrain them later. For more information on infant potty training, go to the Diaper Free Baby website. Doing this for your baby is the best thing you could ever do. Not to mention, you will never have to deal with potty training power struggles, as they will only know the potty and nothing different. You will spare your baby the horrors that diapers bring, such as unbearable and painful diaper rash (Most parents, when changing their babies say “I know. I know it hurts. when the baby is screaming bloody murder due to the pain from a diaper rash. I hate when I hear parents say that because they REALLY DO NOT know how it feels. I just want to scream at them that they do not know and that it is stupid for them to say that they do. I can say that, though, because I do know how it really feels, and believe me, diaper rash hurts so bad that it is unbearable for water of any temperature to even come close to the private areas.), infections, and discomfort, marks on the skin that hurt from the diaper pinching, and friction burns. Diapers may be convenient for the parents, but this convenience comes at the cost of the baby, and I don’t feel like that is fair. So, I will again conclude by saying that diapers are evil, and I will not make my baby wear them. If I did not have to wear them, trust me when I say this, I would not. But I do not have a choice in the matter, so I’m up a creek without a paddle and a canoe. My babies do have a choice, if a medical problem is not present, so I’d like to do some self sacrificing and not subject them to stupid diapers. Stupid, stupid, stupid diapers! There is nothing like wetting and soiling yourself and wearing it. Ah! It’s the life! Not!
Whew! I feel better now!
It has been a long time since I’ve contributed anything worthwhile to this blog. No worries I’ve not forgotten you people. I’ve just been busy, been under the weather, and all that good stuff. I have a whole lot to tell you guys about these past few weeks; however, I will do it gradually in different posts. But for now, I feel like complaining. Everyone is entitled, right? Well, here is my long, drawn out rant. Brace yourself because it will be a long one.
I hate wearing diapers! If I could get rid of them and be cured, I would! No wonder babies cry! No wonder they freak out. To parents who do not understand, and most do not as they are not wearing diapers themselves and do not know how it feels, change your baby as soon as they wet. Please, I beg you please, do not let them sit in it and get to it when it is convenient for you. I know how horrible it feels, and unlike a baby, I can actually communicate this to you. Diapers are the pits. They are the worse. The only thing I’m grateful about them is that they allow me to lead a normal social life. Other than that, I’d love to be rid of them. I’d love to just wave my finger one time and be rid of this stupid incontinence.
When I have children, I’m going to do elimination communication, which means I’m potty training them from birth. I will never, ever subject my baby to the evils of diaper wearing if it is not necessary. If there is no medical problem present, anybody, even a baby, has any business wearing a diaper, since babies are born fully continent. It is our society that trains them to go in a diaper just to retrain them later. For more information on infant potty training, go to the Diaper Free Baby website. Doing this for your baby is the best thing you could ever do. Not to mention, you will never have to deal with potty training power struggles, as they will only know the potty and nothing different. You will spare your baby the horrors that diapers bring, such as unbearable and painful diaper rash (Most parents, when changing their babies say “I know. I know it hurts. when the baby is screaming bloody murder due to the pain from a diaper rash. I hate when I hear parents say that because they REALLY DO NOT know how it feels. I just want to scream at them that they do not know and that it is stupid for them to say that they do. I can say that, though, because I do know how it really feels, and believe me, diaper rash hurts so bad that it is unbearable for water of any temperature to even come close to the private areas.), infections, and discomfort, marks on the skin that hurt from the diaper pinching, and friction burns. Diapers may be convenient for the parents, but this convenience comes at the cost of the baby, and I don’t feel like that is fair. So, I will again conclude by saying that diapers are evil, and I will not make my baby wear them. If I did not have to wear them, trust me when I say this, I would not. But I do not have a choice in the matter, so I’m up a creek without a paddle and a canoe. My babies do have a choice, if a medical problem is not present, so I’d like to do some self sacrificing and not subject them to stupid diapers. Stupid, stupid, stupid diapers! There is nothing like wetting and soiling yourself and wearing it. Ah! It’s the life! Not!
Whew! I feel better now!
Tuesday, May 12, 2009
the All New Incontinence Support Group is Here
I'm pleased to announce that the new incontinence support group is here. You can find the group by clicking here. this support group is not only for incontinence sufferers, it is also for caregivers, as well as for those who are open minded and wants to learn more about the condition. I look forward to seeing this group grow by leaps and bounds. It is my hope and my dream that this group becomes the largest incontinence support group on the web!
Monday, May 11, 2009
An Explanation for the Articles
You are probably wondering why I'mposting very small posts with links that lead to other websites. Well, these are articles that I've written, and I posted the links there so you can read them. since this is an incontinence blog, I thought it appropriate to have all of my incontinence related articles in one place to serve as a resource packed with tons of information.
The articles that i've posted to this blog thus far are ones that I've written about incontinence for Associated Content. I felt that since that site has a large following, what better place it would be to get the word out about incontinence. So far, these articles have had a positive effect. Many of the readers seem to like reading them and feel that they are very informative. this is wonderful, as this brings us one step closer to fighting stigma. While we are a long way from overcoming the stigma, every littlebit helps.
Please, share this blog with all of your friends. Pass it around to as many as possible. the more that read the blog, the more informed people will become about incontinence.
The articles that i've posted to this blog thus far are ones that I've written about incontinence for Associated Content. I felt that since that site has a large following, what better place it would be to get the word out about incontinence. So far, these articles have had a positive effect. Many of the readers seem to like reading them and feel that they are very informative. this is wonderful, as this brings us one step closer to fighting stigma. While we are a long way from overcoming the stigma, every littlebit helps.
Please, share this blog with all of your friends. Pass it around to as many as possible. the more that read the blog, the more informed people will become about incontinence.
Top Six Most Recommended Adult Diapers
Top Six Adult Diapers
Are you looking for the best adult diaper to manage incontinence? Why not check out the top six?
http://www.associatedcontent.comarticle/1390592/top_six_adult_diapers.html
Are you looking for the best adult diaper to manage incontinence? Why not check out the top six?
http://www.associatedcontent.comarticle/1390592/top_six_adult_diapers.html
Saturday, March 28, 2009
How to Tell Your Friend you Suffer From Incontinence
How to Tell Your Friends You Suffer from Incontinence
If the time has come when you'll be telling a friend that you suffer from incontinence, there is no need to worry. Following these tips will make things so much easier.
http://www.associatedcontent.comarticle/1399808/how_to_tell_your_friends_you_suffer.html
If the time has come when you'll be telling a friend that you suffer from incontinence, there is no need to worry. Following these tips will make things so much easier.
http://www.associatedcontent.comarticle/1399808/how_to_tell_your_friends_you_suffer.html
Learn the Causes of Incontinence and How to Mannage
How to Manage Incontinence
Incontinence can be caused by many underlying issues. It helps to know about them, so you can better understand what you are up against.
http://www.associatedcontent.comarticle/1399836/how_to_manage_incontinence.html
Incontinence can be caused by many underlying issues. It helps to know about them, so you can better understand what you are up against.
http://www.associatedcontent.comarticle/1399836/how_to_manage_incontinence.html
Helping a Teen to Cope with Incontinence
How to Help a Teen Suffering from Incontinence
Being a teenager is difficult enough, but when incontinence is thrown into the mix, things are even harder. Learn how you can help a teen who is suffering from incontinence.
http://www.associatedcontent.comarticle/1492026/how_to_help_a_teen_suffering_from_incontinence.html
Being a teenager is difficult enough, but when incontinence is thrown into the mix, things are even harder. Learn how you can help a teen who is suffering from incontinence.
http://www.associatedcontent.comarticle/1492026/how_to_help_a_teen_suffering_from_incontinence.html
Saturday, January 24, 2009
Incontinence Resources and Online Support Groups for Incontinence Sufferers
The list is few for good resources. However, I've compiled some that I feel are most helpful to incontinence sufferers. If you are incontinent, or if you have a child who suffers from incontinence, look no further. The searching ends here. The list of incontinence resources and online incontinence support groups are as follows:
www.aboutincontinence.org/
www.simonfoundation.org This organization offers online support, as well as a ton of information about incontinence. This was the first organization I came into contact with at the age of nineteen.
www.depend.com This is another site that is packed with information. They also have message boards where you can talk with other incontinent individuals. You'll need to click the "Friends and Sharing" link.
www.nafc.org Like the others, help and support are offered. This is a very wonderful site.
www.healthcentral.com/incontinence/support-groups.html This one is not blind friendly. A captcha is neded in order to join. We wil hopefully write the site owners about making this change.
www.dailystrength.org/c/Urinary-Incontinence/support-group This is a urinary incontinence support group. You can also look up their other intity http://dailystrength.org/support-groups Daily Strength is one of the top websites for support.
www.care2.com/c2c/group/Incontinence This is another online support group.
www.healthboards.com This is for all medical conditions. You'll have to look for the one specific to incontinence.
www.wrongdiagnosis.com This site has information on a host of medical conditions, as well as message boards. You'll need to find the ones specific to incontinence.
http://www.mdjunction.com/urinary-incontinence This group here is geered to urinary incontinence.
I truly hope this helps you.
www.aboutincontinence.org/
www.simonfoundation.org This organization offers online support, as well as a ton of information about incontinence. This was the first organization I came into contact with at the age of nineteen.
www.depend.com This is another site that is packed with information. They also have message boards where you can talk with other incontinent individuals. You'll need to click the "Friends and Sharing" link.
www.nafc.org Like the others, help and support are offered. This is a very wonderful site.
www.healthcentral.com/incontinence/support-groups.html This one is not blind friendly. A captcha is neded in order to join. We wil hopefully write the site owners about making this change.
www.dailystrength.org/c/Urinary-Incontinence/support-group This is a urinary incontinence support group. You can also look up their other intity http://dailystrength.org/support-groups Daily Strength is one of the top websites for support.
www.care2.com/c2c/group/Incontinence This is another online support group.
www.healthboards.com This is for all medical conditions. You'll have to look for the one specific to incontinence.
www.wrongdiagnosis.com This site has information on a host of medical conditions, as well as message boards. You'll need to find the ones specific to incontinence.
http://www.mdjunction.com/urinary-incontinence This group here is geered to urinary incontinence.
I truly hope this helps you.
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